Health Check: Warwick family plans RI’s first brain tumor walk

A Warwick family has organized Rhode Island’s first brain tumor walk. (WJAR)

A Warwick family has organized Rhode Island’s first brain tumor walk.

Meredith and Brian Lindberg have a personal reason for doing this: their 4-year-old daughter, Makayla, who’s almost five.

"Everything takes a little longer. She has low muscle tone,” said Brian.

That’s why Makayla wears braces on her feet to help her get around better.

"When she gets sick it takes a little longer for her to rebound,” Brian said.

Her medical issues started shortly after birth when her parents noticed something was off with her right eye.

"The back of her eye did not completely form,” said Meredith. “She has a hole in her eye.”

Now, Makayla is basically blind in that eye.

Then, on Christmas Eve 2015, they found out that she had a tumor when she was just 2-and-a-half-years old.

"It's between the back of the eye and the pituitary gland, so you can't really operate back there," said Brian.

Doctors aren't even sure what type of brain tumor Makayla has, but she is monitored closely to see if it grows.

Unfortunately, it has.

"We do have plans in place if it continues to grow,” said Meredith, who added that chemotherapy is an option.

But the couple have now become activists, as they are planning Rhode Island's first brain tumor walk.

While they were hoping for 100 participants, they’ve more than doubled that number already.

"As of this morning, we're like 230 people,” said Brian. “We've raised over $17,000.”

"If it helps somebody today, if we keep raising money and doing the research, hopefully there'll be something to help her tomorrow," said Meredith.

The Rhode Island Brain Tumor walk is scheduled to take place Sunday, April 15, at Goddard State Park beginning at 10 a.m. You can register on line by Friday or that morning, beginning at 8:30 a.m.

The money will directly go to the National Brain Tumor Society to fund research.

Click here to learn more.

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